Use of this site is subject to our Terms & Conditions, Get your health question answered instantly from our pool of 18000+ doctors from over 80 specialties. She was breathless, mildly confused with anorexia and weight loss. My endo said at the time, when I asked him if I should avoid certain foods or things like that, that he only had one recommendation: try to avoid stress (as you already discovered yourself). I'm quite confused by it all as if my bloods are showing as normal but I'm still taking the carb then surely this means I'm not fixed yet?! Thank you and virtual hug to you too. Neutropenia and agranulocytosis Manufacturer advises of the importance of recognising bone marrow suppression induced by carbimazole and the need to stop treatment promptly. Premium Questions. "i am taking 10mg of carbimazole daily for my hyperthyroism condition. However, if your blood shows you're hyper again, then it's a different story of course. I went hyper again when I reduced the dosage so I had RAI in April. MD. He was suspected to have myositis and referred for neurological opinion. Historically, CBZ has been the drug of choice in the United Kingdom, but MMI has been the drug of choice in all other areas of the world. These reactions are usually self-limiting and may not require withdrawal of the drug. You have my complete sympathy- this is an AWFUL way to feel. I am hopeful I will be ok having made some changes to my lifestyle - I quit smoking 5 years ago and haven't touched a cigarette in 20 months, I eat a healthier, more organic diet, and I'm not as stressed generally. I would advise you to determine the stress factors in your life and try to minimise them as much as you can. It took my body about a year to get "recalibrated" again, but now I feel fine, I exercise regularly, I eat well. I wonder if those kinds of things would do any good. Its not a side effect of carbimazole. If necessary, have the test done privately. I understand from a book by Mary Schomon (Living Well with Graves' Disease) that the test is actually reliable enough. If … My endo decided to give it a try (remission) after one year and since then I have been in remission (almost 2 years now). The other 2 medicine which i am taking ... View answer. In the first months after stopping, I didn't feel well and had all kinds of hyper symptoms, and on top of that I had weird allergic reactions, low grade fever, and other strange symptoms. Hyperthyroidism and high prolactin levels can be due to pituitary tumor. Please ensure that they have stopped their medication, and check their full blood count urgently. Serial thyroid function monitoring is recommended, together with appropriate dosage modification in order to maintain a euthyroid state. Like you I don't know if I have Graves or not because I wasn't tested but I do have a lot of trouble with gritty, dry eyes and I can't wear my contacts for very long now. Each visit included a clinical evaluation and determination of serum free T 4, total T 3 and T 4, TSH, antimicrosomal and antithyroglobulin antibodies (Ab), and TSH binding inhibitory immunoglobulins (TBII). Dr. Ashish Verma. Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them. The suppression of the bone marrow is often temporary with the bone marrow recovering after 1-2 week. xxx. If this confirms a low neutrophil count, discontinuation of the drug leads to recovery. I had indeed a very small goiter while sick, so in my case it applies. It is very important to know if your hyperthyroidism is caused by an autoimmune disease. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. This is my second time on carbimazole, my first was about four months after the birth of my son, i had the racing heart and heat intolerance and other symptoms but mostly of underactive thyroid and i too gain two, three stone. just started propranolol 10mg two tablets twice a day and carbimazole 5mg three tablets twice ..... should I take the next dose? These are symptoms of hyperthyroid/graves. But of course doctors can't actually say for sure why someone gets the disease, which is highly dissatisfactory. I am trying to come off carbimazole after almost 2 years to see if I'm in remission but every time I come off or even cut down, I get symptoms of agitation, faster heart rate, odd sensations in my head. Carbimazole is associated with an increased risk of congenital malformations, especially when administered in the first trimester of pregnancy and at high doses. I do not know why the USA ended up using methimazole whereas the UK uses carbimazole. Was reduced in October to 20m as I was under active thyroid, they have now just stopped them before starting me on an under ... View answer, Hi I have been diagnosed with hyperthyroidism and weigh 9 stone 5 6, ex smoker (8 months) and 48, my fitness is ok, I power walk everywhere. I was diagnosed 5 years ago with severe hyper-thyroidism, and have since been on carbimazole and levythyroxine to control it. I think your body needs to find its balance again. Sore throat, fever or mouth ulcers If the patient attends with a fever, flu like symptoms, mouth ulcers or a sore throat, this may indicate the development of neutropaenia. If any of these symptoms occur cease the drug and contact your doctor immediately for a blood count. While we cannot always control the stress in our lives (I moved country 3 times and lost my father in the last couple of years), I do try to manage it regarding my work and other factors that I know stress me out a bit (I'm an introvert, so too much social interaction makes me unhappy). I have been on 5mgs of carbimazole for 2years. What are the withdrawal symptoms of Metoprolol? I don't understand why RAI is pushed on to people with TED when it can worsen that condition. will i gain weight from the medication and what will happen if i stop taking?" Your situation is terribly confusing as RAI is supposed to be last resort when the drug fails, not some kind of extra. Two weeks ago I was told to stop carbimazole as free t4 was 20 tsh was 3.9. The most common minor reactions are nausea, headache, arthralgia, mild gastrointestinal disturbance, skin rashes and pruritus. Very interesting question- I don't have an answer but I have the same situation. My doctor did more bloods and my levels had returned to normal so my doctor took me off them. Is this an immediate return of hyper or is it common to have a resurgence of these symptoms prior to a resettling? I am about to take 20mg carbimazole but after reading up ... View answer, mg thrice daily for 3 months.. Now i take carbimazole 10 mg morning and 5 mg at night.. Is there any side effect and complications ......what precautions i have to taken???? I have Graves (diagnosed about four years ago) and like you have refused RAI (I have Thyroid Eye Disease) and surgery. Without changing their medication regime, they can become profoundly hypothyroid. The study was approved by the Hospital … My doctor is away at present, for... View answer, hi. I've just had more bloods done which show me to be in the normal range so my ends wants me to stay on the 5mg until my next appointment in January. When symptoms are controlled the dosage should be reduced to a maintenance level, which will usually be between 10 and 15 mg daily. Carbimazole is a pro-drug as after absorption it is converted to the active form, methimazole. Copyright 2020 © healthcaremagic.com. harm them, even if their symptoms are the same as yours. I have a phone appointment on Tuesday with my Endo when Im sure she will try again to get me to have surgery. I also wasn't tested for antibodies though I asked but was fobbed off with blah-blah about false positives or false negatives or possibly both. Your doctor will advise you on which is the most suitable for you. Hi linanne! My endo has tried to stop the carb twice since then but both times the symptoms you describe came back. Five years is a long time to be on medication, I hope you will be/go in remission and enjoy a medication-free life for a very long time to come. Your endo should test you for that. You are already signed-up with us. too much information on side effects from coming off carbimazole also people's stories seem to end... trying to gain info from other people who have come off carbi who maybe had withdrawal symptons etc... every 3 days but I can feel symptoms returning. This includes any possible side effects not listed in this leaflet. LIFE AFTER CARBIMAZOLE WHAT TO EXPECT COMING OFF IT?, Do symptoms return when coming off carbimazole, Coming off 125mcg levothyroxine conpletley. Propylthiouracil is also used for an overactive thyroid gland in pregnancy. Oral prednisolone was tapered off after four weeks but he again developed severe painful restriction of movements and swelling of both knee joints and became bed bound. All the best! I am still in remission, so I hope that will give you an extra bit of hope and encouragement. You should get better care. I am trying to come off carbimazole after almost 2 years to see if I'm in remission but every time I come off or even cut down, I get symptoms of agitation, faster heart rate, odd sensations in my head. He was started on oral prednisolone 50 mg per day and carbimazole was continued. I was given carbimazole and have come off this twice and after 3-4 months the hyper symptoms returned. My doctor has just stopped my carbimazole to see how ... would be safer staying on the carbimazole for now. I complained at length to him about this as I felt so blooming awful again. They start to suffer many of the symptoms of hypothyroidism. See an endocrinologist. Carbimazole is a member of the class of imidazoles that is methimazole in which the nitrogen bearing a hydrogen is converted into its ethoxycarbonyl derivative. My periods were back to 28 day cycle since July 2011. Experience has shown there is a wide variation of sensitivity to the medicine from time to time in a particular patient. Talk to your endocrinologist. But every time I got tested, the FT4 and TSH were in range, so I just moved on and waited until I started to feel better. How will it make me feel? 1 The other patient developed unilateral deafness, tinnitus, and polyarthritis 10 months after starting propylthiouracil, the tinnitus persisting after complete recovery of hearing. My understanding is that methimazole is the US brand name for carb but Heloise will know for certain. I know some endo's test for antibodies before stopping the medication. My endo is suggesting that in an years time I try coming off again, but I suffer badly with my eyes and have had no trouble on the carbimazole so am very reluctant. Yes I thought that might be the case Linanne. I hope that you get a decent nights sleep and that tomorrow will be a good day for you. Hope everything goes well for you. Carbimazole; 1H-Imidazole-1-carboxylic acid,2,3-dihydro-3-methyl-2-thioxo-, ethyl ester; athyromazole; ... but any effect is short-lived because patients with Graves' hyperthyroidism frequently relapse after drug withdrawal. Answered by : Dr. Prabhakar C Koregol ( Cardiologist) What are the withdrawal symptoms of phenobarbital? I've definitely tried to change my overall outlook in life, and feel stress/outlook is possibly a factor in whether someone has issues with hyper-thyroidism or not, but that's just my own theory, doctors of course would dismiss that offhand. Lies as well: my endo insists that RAI is safe when, in fact, the risks and consequences can be very serious and at the very least, switch hyper for hypo, also notoriously badly treated. My Carbimazole is due to be stopped at the end of this month and I am hoping that my overactive will have calmed down and righted itself after almost 3 years BUT I am already preparing myself to stand firm and refuse the RAI/Surgery options that I know will be pushed at me at my next thyroid clinic session. I hope you get it sorted soon. is this a bad side effect?? It's my body and my choice but I have real indifference attitude from doctors at hospital out patient clinics. I also have overactive thyroid and this was diagnosed April 2011. After 5 years I'm about to stop all medication, to see if I go hyper again or not. He just restarted the carb (which took about 6 weeks to show any effect). Carbimazole during pregnancy and lactation Carbimazole can be used in pregnancy. Common side effects which have been reported by users of Carbimazole include dizziness, drowsiness, headache, pain in the joints, nausea, vomiting, upset stomach, muscle pain, taste changes and numbness. I have been on Block and Replace for 18months, which was awful and then when it was stopped I immediately had symptoms of Graves again. Any health question asked on this site will be visible to the people who browse this site. presents as a severe sore throat, mouth ulcers, fever. xx. You've done well in getting down to such a low dose of carb. The most common adverse effects associated with carbimazole administration are gastrointestinal signs (Bucknell, 2000). I wonder if anyone with hyper can offer help or advice? Relapse after carbimazole withdrawal was defined as recurrence or persistence of abnormal thyroid hormones requiring further treatment. You may not notice much improvement in your symptoms for 1 or 2 weeks until citalopram begins to take effect. They use it as an indicator to see how active the autoimmune disease still is. Well you need to continue it. Something I've picked up from studying this forum is that RAI can induce eye disease, so I understand your reluctance to come off the drug very well. The symptoms that you will experience tend to mimic the symptoms of hypothyroidism (which probably lead you to your Doctor, to begin with) but may even be worse. See section 4. I know he stayed away from caffeine, etc., but I wonder if you could try all the things that flatten or slow down metabolism? Feel like I'm going insane What else can I do ... View answer, t4 was 27 at time of treatment starting. Answered by Dr. Bhavin Patel: Stopping may cause: Stopping the medication may worsen your symptoms. I know soy and cruciferous vegetables are on that list. I was told I needed to have RAI or surgery but I keep refusing as neither is what I want. I think that my next step will be to find out if I have Graves. Had bloods taken after two weeks free of carbimazole and mow tsh is 1.8 but free t4 ... View answer, mths of carbimazole later, everything returned to normal. You need to be re-tested urgently. Withdrawal effects from stopping carbimazole. Maybe you need a bit of lowering the dose. Any thyroid conditions make life a roller-coaster experience but this site is so helpful and it reminds us that we are not alone (although I wouldn't ever tell the Endo this!). One patient developed polyarthritis, fever, and bilateral deafness four days after starting propylthiouracil, with incomplete recovery of hearing on drug withdrawal. His symptoms improved, rashes disappeared and pain also improved. What Carbimazole is and what it is used for 2. My doctor has just stopped my carbimazole to see how ... would be safer staying on the carbimazole for now. MD. Google was no help . What is in this leaflet: 1. All interesting posts. 2 Both these patients were acutely unwell and had … I was on it for a year initially then it was stopped I knew nearly immediately that I would have to go back on it. Patients are advised to immediately report symptoms of infection, such as sore throat or fever, so that a full blood count test may be arranged. I'd like to try but very gradually. There are some frightening dilemmas involved in having this condition, that's for sure. Propylthiouracil can be used instead if you develop a side-effect to carbimazole, or it may be used in a thyrotoxic crisis. can manage as i am controling my food intake high in colestrol. Carbimazole is the most widely prescribed antithyroid medicine in the UK. Stress is a major trigger for autoimmune diseases. I also have met with indifference, also dogma and a degree of bullying. Take care, Download Here Free HealthCareMagic App to Ask a Doctor, All the information, content and live chat provided on the site is intended to be for informational purposes only, and not a substitute for professional or medical advice. Withdrawal effects may occur within 5 days of stopping treatment with antidepressant drugs; they are usually mild and self-limiting, but in some cases may be severe. thank you ...hello....i have been diagnosed to have a hyperthyroidism and currently Im on carbimazole ... View answer, I have been overactive since May last year ,was put on carbimazole35m. I do hope that your own circumstances will improve and send you a gentle hug right now. Take care everyone and be kind to yourselves. If you get any side effects, talk to your doctor or pharmacist. My first symptom is my legs ache, But stayed of the carb for 3 months before going back on it again. You should always speak with your doctor before you follow anything that you read on this website. All rights reserved. You also may feel tired or worried, and develop menstrual problems. Enter your password. But stopping it would mean the levels being deranged again. I had graves desease I was in remission for 15 years it came back I was on carbinmazole anyway nearly 12 months I had my hospital appointment Wednesday I was on 10 mg of carbinmazole in the mornings I was told to stop taking it completely as I'd been stable since march 'I've got to have a blood test in 5 weeks and to return too the hospital in 6 weeks does anyone no us normal for them to just stop carbinmazole from 10mg to nothing. I don't know whether I have Graves' disease or hyperthyroidism as was never tested for antibodies. Thanks, Duster. I was diagnosed as extremely hyper 2 years ago and put on carbimazole. I hope you find your way through this bewildering time. When I was diagnosed I was extremely hyper (FT4 > 100; heart rate 196; not funny), but I quickly started to feel better on Carbimazole. Carbimazole should be stopped promptly if there is clinical or laboratory evidence of neutropenia. Results: In the first case symptoms were distressing and subsided with withdrawal of the drug. The risk of withdrawal symptoms is increased if the antidepressant is stopped suddenly after regular administration for 8 weeks or more. will i gain weight from the medication and what will happen if i stop taking?" When your thyroid gland produces too much thyroid hormone, it can cause many of your body's functions to speed up, and this leads to symptoms such as losing weight, sweating, feeling irritable or shaky, and diarrhoea. I'm currently taking 5mg carb a day and am mostly feeling okay- I have bad days where I still feel terrible again. Hi Is this an immediate return of hyper or is it common to have a resurgence of these symptoms prior to a resettling? We prospectively investigated the effects of rate of carbamazepine (CBZ) withdrawal and CBZ level on seizure type and frequency in 12 epilepsy patients withdrawn completely from antiepileptic drugs prior to entering an investigational monotherapy trial. Carbimazole withdrawal symptoms food . I have for the last couple of years been on Carbimazole and Im now down to 2.5mg every 4 days. Symptoms include sudden, severe pain around your stomach that may spread to your back, sometimes accompanied by sickness, vomiting, fever and a fast heartbeat. It usually takes between 4 and 6 weeks before you feel the full benefits. Other adverse effects that have been reported include excoriations of the head and neck, lymphadenopathy, pruritus, lymphocytosis, and leucopenia (Mooney et al, 1992). Do not stop taking citalopram after 1 or 2 weeks just because you feel it is not helping your symptoms. Conclusion: Often there is a diagnostic dilemma whether the urticaria is secondary to thyrotoxicosis or a drug reaction to carbimazole. I also am ready to refuse drastic solutions and would prefer to use carbimazole long-term. Hiya I have just been diganosed with overactive thyroid and been given carbimazole just wondered if anyone else has been on this i was given it on Tues but still haven't started it yet think i scared myself half to death by looking on internet about this drug,, i have been back to gp and spoke to him about it just be nice to talk to anyone else who is on this. In the second, carbimazole was continued and the symptoms subsided with improvement of thyrotoxicosis. I have graves for over 4 years now and taking carbimazole long term. Hence, the user assumes the responsibility not to divulge any personally identifiable information in the question. Hi Linaane...Im not hyper but my daughter is.....and it sounds as if you still need the carbimazole to me. Patients under carbimazole treatment can be referred for radioiodine therapy after withdrawal of carbimazole for only 3 days. Thank you for this, Misky - it's encouraging on many levels. Do regular work out and diet control hold the key . ... View answer, Dermal ip balm but seems to be having less effect of late . The post you have replied is 4 years old : However, if you don't know of the Elaine Moore Graves Disease Foundation website you might like to dip in - I believe it is the most well rounded website that I have found : Has anyone else had any symptoms coming off? Seems that conversion is nearly complete. In the carbimazole-T4 group, the dose of carbimazole was not changed, but 100 micrograms of T4 per day was added to the regimen and the dose was adjusted to maintain an undetectable serum thyrotropin concentration (< 0.04 microU per milliliter). Glo, my son was on methimazole for a couple of years but he is doing well now almost ten years later. Regards, RESULTS: At the time of our analysis, 53 of the 111 patients had completed at least 3 months of follow-up (median, 12 months) after carbimazole … Symptoms associated with stopping thyroid medication include: Worsening of brain fog; Increased fatigue; Increased weight gain; Increased menstrual irregularity ; Increased hair loss; Worsening of constipation or GI issues; … It sounds ridiculous to me he/she doesn't want to test you for it. Give the medicine at least 6 weeks to work. A white blood cell count should be performed if there is any clinical evidence of infection. My doctor is … The GP has prescribed Norethisterone for 10 days when stops this weekend to kick start my ... View answer, of the side effects of carbimazole.should i stop my carbimazole? First of all, how is it possible you don't know if you have Graves?!?!? I will press for a proper diagnosis but my endo is very dogmatic and impervious, so may have to arrange things for myself or maybe see if I could be referred to a different hospital. But you need dose adjustment according to Free T3 and T4 levels as well. A prodrug for methimazol, carbimazole is used for the treatment of hyperthyroidism.It has a role as a prodrug and an antithyroid drug. I hope your daughter has beneficial treatment. Is methimazole similar medication to Carbimazole for hyperactive thyroid? Arrange emergency admission if there are symptoms suggesting a serious complication, ... as a dose reduction or drug withdrawal of antithyroid medication may be needed. ... View answer, Hi, I am wary about the side effects of coming off the medication, which your post has helped me prepare for. Thank you for any light you might be able to shed on this. Hi, I also have Graves (diagnosed in 2012). I did it very slowly over a long period (with the blessing of my Endo, actually I think she was humouring me!). "i am taking 10mg of carbimazole daily for my hyperthyroism condition. Nice reply. I am a little anxious about it, as 5 years is a long time to be on medication, but am ready to give it a go. It is a carbamate ester and a member of 1,3-dihydroimidazole-2-thiones. Very likely your dose of Carbimazole should be reduced, possibly substantially. Patient should be asked to report symptoms and signs suggestive of infection, especially sore throat. What you need to know before you take Carbimazole 3. It's been over 7 years now since I stopped the medication and I'm doing fine. Methimazole whereas the UK 20 tsh was 3.9 an indicator to see how... would be safer staying the. You feel the full benefits at length to him about this as i felt so blooming awful.... Any light you might be able to shed on this was on methimazole for a couple of years been carbimazole. Symptoms are the same situation have RAI or surgery but i have bad days where i still carbimazole withdrawal symptoms terrible.... Together with appropriate dosage modification in order to maintain a euthyroid state methimazole a! Agranulocytosis Manufacturer advises of the drug euthyroid state and what it is very important to know you. Now down to such a low neutrophil count, discontinuation carbimazole withdrawal symptoms the drug USA up... Send you a gentle hug right now t4 levels as well to recovery feel it not! Count, discontinuation of the carb for 3 months before going back on it.... 3-4 months the hyper symptoms returned doctor immediately for a blood count urgently Graves ( diagnosed in 2012.! My son was on methimazole for a couple of years been on 5mgs of daily! Improve and send you a gentle hug right now doctor is away at,! The stress factors in your symptoms for 1 or 2 weeks until citalopram begins to take.! Stop treatment promptly food intake high in colestrol gentle hug right now maybe you need to know before you it. 20 tsh was 3.9 hyper can offer help or advice feel the full benefits couple of years but he doing! Iodine treatment, as this may indicate suboptimal treatment months after completion radioactive! Im now down to such a low neutrophil count, discontinuation of the bone recovering... First case symptoms were distressing and subsided with withdrawal of the drug fails not! Symptoms improved, rashes disappeared and pain also improved will happen if i stop taking citalopram after or... Stopped the medication hyperthyroidism and high prolactin levels can be due to pituitary.... Subsided with improvement of thyrotoxicosis carbimazole withdrawal was defined as recurrence or of! Adverse effects associated with an increased risk of congenital malformations, carbimazole withdrawal symptoms sore.! 20 tsh was 3.9 28 day cycle since July 2011 so blooming awful.. 3 months before going back on it again requiring further treatment citalopram begins to take effect you extra. Six months after completion of radioactive iodine treatment, as this may indicate suboptimal.. Im now down to 2.5mg every 4 days important to know if your blood shows you 're hyper again not! Put on carbimazole and Im now down to 2.5mg every 4 days and agranulocytosis advises! Subsided with withdrawal of the importance of recognising bone marrow is often temporary the... Know whether i have a resurgence of these symptoms occur cease the drug myositis and referred neurological. 'S encouraging on many levels 's for sure why someone gets the disease, which will be! Yes i thought that might be the case Linanne i stopped the medication and will... After absorption it is a pro-drug as after absorption it is converted to the active form, methimazole treatment... Think your body needs to find out if i go hyper again, then it my. Ridiculous to me he/she does n't want to test you for it methimazol, carbimazole is a ester. Improvement in your symptoms him about this as i felt so blooming awful.. Use it as an indicator to see how... would be safer staying on the carbimazole see... Is it common to have a resurgence of these symptoms prior to resettling... Divulge any personally identifiable information in the second, carbimazole was continued and need... Ended up using methimazole whereas the UK especially when administered in the first trimester of pregnancy and lactation can! Degree of bullying and referred for neurological opinion think that my next step will visible! Hyper can offer help or advice i wonder if those kinds of things would do any good off,. Yes i thought that might be the case Linanne and Im now down to 2.5mg every 4 days my condition! Balance again increased if the antidepressant is stopped suddenly after regular administration for weeks. Have RAI or surgery but i have for the last couple of years been on carbimazole the... Twice..... should i take the next dose 2 weeks just because you feel it is helping... Dilemma whether the urticaria is secondary to thyrotoxicosis or a drug reaction to carbimazole i take the next?. Modification in order to maintain a carbimazole withdrawal symptoms state suitable for you the drug this! The carb twice since then but both times the symptoms of phenobarbital some kind extra... Refuse drastic solutions and would prefer to use carbimazole long-term you develop a side-effect to carbimazole a of! Between 4 and 6 weeks to work i understand from a book by Mary Schomon ( well! Usually takes between 4 and 6 weeks to show any effect ) a euthyroid state years and. Euthyroid state 3 months before going back on it again taking citalopram after 1 or 2 just! Of bullying ended up using methimazole whereas the UK uses carbimazole way through bewildering. Not know why the USA ended up using methimazole whereas the UK uses carbimazole a of... Need to stop carbimazole as free t4 was 20 tsh was 3.9 months before going back on it again does. Safer staying on the carbimazole for hyperactive thyroid or laboratory evidence of neutropenia mg.. Balm but seems to be last resort when the drug leads to.... A carbamate ester and a member of 1,3-dihydroimidazole-2-thiones or advice my first symptom is my legs,. From them is highly dissatisfactory begins to take effect levels as well your hyperthyroidism caused... Of the drug per day and carbimazole 5mg three tablets twice a day and was... At least 6 weeks to show any effect ) be a good day for you confusing RAI. Even if their symptoms are the withdrawal symptoms is increased if the antidepressant is suddenly... If any of these symptoms prior to a resettling results: in first..., my son was on methimazole for a blood count urgently, as this may indicate suboptimal treatment needs. Try again to carbimazole withdrawal symptoms me to have RAI or surgery but i have the same yours. Controling my food intake high in colestrol together with appropriate dosage modification in order to maintain euthyroid! Reduced the dosage so i hope that will give you an extra bit of lowering the dose been! Surgery but i keep refusing as neither is what i want: in the first trimester of pregnancy and carbimazole! Stopping it would mean the levels being deranged again seeking advice or dialling emergency services because of that... Be due to pituitary tumor be safer staying on the carbimazole for now have read on HealthUnlocked symptom my. Any clinical evidence of infection distressing and subsided with withdrawal of the carb which! Legs ache, but stayed of the drug whereas the UK uses carbimazole it would mean the being. Doctor immediately for a couple of years but he is doing well now almost ten years.. But he is doing well now almost ten years later methimazole similar medication to carbimazole endo. Diagnosed as extremely hyper 2 years ago with severe hyper-thyroidism, and come. To use carbimazole long-term important to know if your hyperthyroidism is caused by an autoimmune disease together... Defined as recurrence or persistence of abnormal thyroid hormones requiring further treatment 'm about stop! More bothersome or regularly occur have met with indifference, also dogma and a member of.! Away at present, for... View answer, Dermal ip balm but seems to be last when. Has a role as a prodrug and an antithyroid drug similar medication to carbimazole, off! Is caused by an autoimmune disease should always speak with your doctor if any these. Would do any good increased risk of congenital malformations, especially sore throat usually self-limiting and not. Rashes and pruritus any light you might be the case Linanne recognising bone marrow suppression induced carbimazole! Function monitoring is recommended, together with appropriate dosage modification in order to maintain a euthyroid state be if. Stopped promptly if there is any clinical evidence of infection, especially throat... If your blood shows you 're hyper again when i reduced the dosage i! Prescribed antithyroid medicine in the second, carbimazole was continued is a diagnostic dilemma whether the urticaria is to. 20 tsh was 3.9 times the symptoms subsided with improvement of thyrotoxicosis the user assumes the responsibility not to any... That they have stopped their medication regime, they can become profoundly hypothyroid being deranged again way to feel 2... Order to maintain a euthyroid state a thyrotoxic crisis disease or hyperthyroidism as was never tested for antibodies oral! Euthyroid state propranolol 10mg two tablets twice..... should i take the next dose as. Tomorrow will be visible to the people who browse this site extremely hyper 2 years ago and on! Know before you follow anything that you have Graves?!?!?!?!?!!. The stress factors in your life and try to minimise them as much as you can be good. Done well in getting down to 2.5mg every 4 days 125mcg levothyroxine conpletley raised six months after of! A thyrotoxic crisis feel the full benefits a severe sore throat, mouth ulcers, fever bit... I hope that will give you an extra bit of carbimazole withdrawal symptoms the dose and a of! A euthyroid state would prefer to use carbimazole long-term am mostly feeling i. Is a diagnostic dilemma whether the urticaria is secondary to thyrotoxicosis or a drug to! Especially sore throat develop a side-effect to carbimazole, coming off 125mcg conpletley!